Rare diseases are known to affect less than 200,000 people out of the population in any area.

RARE DISEASE

Rare diseases are mostly chronic, degenerating, and life-threatening. People with these diseases go through a high level of pain and suffering. 

According to research, rare diseases affect 3.5% - 5.9% of the worldwide population.

Some rare diseases are

Ehlers Danlos syndrome

Tyrosinemia type 1

Duchenne Muscular dystrophy

Cystic fibrosis

NGLY-1 deficiency

Fibrodysplasia Ossificans Progressiva

Our Team

Our team consists of the following:

Biotechnologists

Caregivers

Healthcare professionals

Counsellors

Psychologists

Research Technicians